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  3. B.C. government won't fund drug for rare disease for nine-year-old girl

B.C. government won't fund drug for rare disease for nine-year-old girl

Scheduled Pinned Locked Moved Canada
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  • Sunshine (she/her)S This user is from outside of this forum
    Sunshine (she/her)S This user is from outside of this forum
    Sunshine (she/her)
    wrote on last edited by
    #1
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    B.C. government won't fund drug for rare disease for nine-year-old girl – Energeticcity.ca

    VICTORIA — The British Columbia government says it will no longer fund an expensive drug for a nine-year-old girl who has a rare and terminal condition.

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    Energeticcity.ca (energeticcity.ca)

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    • Sunshine (she/her)S Sunshine (she/her)
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      B.C. government won't fund drug for rare disease for nine-year-old girl – Energeticcity.ca

      VICTORIA — The British Columbia government says it will no longer fund an expensive drug for a nine-year-old girl who has a rare and terminal condition.

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      Energeticcity.ca (energeticcity.ca)

      B This user is from outside of this forum
      B This user is from outside of this forum
      betadoggo_@lemmy.world
      wrote on last edited by
      #2

      The statement says clinical evidence shows that once a patient has declined in motor skills and language functions by a certain amount, the drug is no longer a benefit in slowing the progression of the disease.

      Sounds reasonable

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