Well that was a seriously shit day š©
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Kid, who is normally more of a quiet sort, kept going like a dynamo until 1am, when I finally couldnāt keep up anymore.
Of course, the hospital doesnāt necessarily let us sleep in. So it was a fairly short night. But itās so great to see the kid doing better.
Going from āoh fuck someone call an ambulanceā to āwill you please let me sleep nowā in the space of just three days is quite a journey
Iām rapidly turning into the kind of guy who knows how many carbs are in everything
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Disability is something that society does to people.
Our kid just got diagnosed with diabetes. Yes, that sucks. But thereās a society wide support system.
A whole team of professionals is helping us. Insulin is available, paid by health insurance, and thereās a range of devices to administer it. Thereās mandatory labels on food.
Our kid will live a full and healthy life, with minor adjustments.
Why canāt we have the same for, say, wheelchair users?
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Disability is something that society does to people.
Our kid just got diagnosed with diabetes. Yes, that sucks. But thereās a society wide support system.
A whole team of professionals is helping us. Insulin is available, paid by health insurance, and thereās a range of devices to administer it. Thereās mandatory labels on food.
Our kid will live a full and healthy life, with minor adjustments.
Why canāt we have the same for, say, wheelchair users?
Shifting down to a lower alert level. With the singular focus of the emergency situation no longer necessary, other thoughts creep back into the main brain.
Iād much prefer to sleep, just like kiddo in the next bed, who is doing So Much Better already.
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Shifting down to a lower alert level. With the singular focus of the emergency situation no longer necessary, other thoughts creep back into the main brain.
Iād much prefer to sleep, just like kiddo in the next bed, who is doing So Much Better already.
Kid is learning how to manage their diabetes. Weāre (probably) getting an insulin pump tomorrow!
They moved us to a shared room. A girl with diabetes and her mum, and another girl who swallowed a magnet š§²
Theyāre treating us well, and the mood is fine. But I would absolutely kill for a plate of fries and a beer right now.
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Kid is learning how to manage their diabetes. Weāre (probably) getting an insulin pump tomorrow!
They moved us to a shared room. A girl with diabetes and her mum, and another girl who swallowed a magnet š§²
Theyāre treating us well, and the mood is fine. But I would absolutely kill for a plate of fries and a beer right now.
Also, being somewhat social all day long is terribly exhausting.
The medical attention is top-notch though. In this public hospital, just today, weāve been seen by
- the regular doctor
- two diabetes specialists
- a psychologist
- an eye doctorplus a person who runs an arts & crafts room for the patients just across the hall.
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Also, being somewhat social all day long is terribly exhausting.
The medical attention is top-notch though. In this public hospital, just today, weāve been seen by
- the regular doctor
- two diabetes specialists
- a psychologist
- an eye doctorplus a person who runs an arts & crafts room for the patients just across the hall.
I should add that we didnāt request any of those people.
They simply showed up, because thatās part of the protocol here. There will be no charge for us.
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I should add that we didnāt request any of those people.
They simply showed up, because thatās part of the protocol here. There will be no charge for us.
The nurse is putting a basketball net in our room right now. This will surely go well.
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Iām on leave from the hospital for a few hours, with my wife taking my place. Using the time to go to the gym again, finally.
Oh, and sneak off to the shops to buy some chocolate for discreet enjoyment
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Iām on leave from the hospital for a few hours, with my wife taking my place. Using the time to go to the gym again, finally.
Oh, and sneak off to the shops to buy some chocolate for discreet enjoyment
Kiddo got fitted with an insulin pump! Exciting new technology, and it seems to be working well. We (kid + parents) got a two-hour training on using the pump. Pretty cool!
Our health insurance company was also really relaxed about approving the pump. One phone call, and two days later, it's here. Nice!
I snuck a bag of M&Ms into the hospital room, which I'm secretly munching while the kid is occupied elsewhere.
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Kiddo got fitted with an insulin pump! Exciting new technology, and it seems to be working well. We (kid + parents) got a two-hour training on using the pump. Pretty cool!
Our health insurance company was also really relaxed about approving the pump. One phone call, and two days later, it's here. Nice!
I snuck a bag of M&Ms into the hospital room, which I'm secretly munching while the kid is occupied elsewhere.
This is your near-daily public health insurance appreciation post.
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Weāre stuck in the hospital for Thanksgiving.
Helpfully, Thanksgiving is not a thing around here.
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Weāre stuck in the hospital for Thanksgiving.
Helpfully, Thanksgiving is not a thing around here.
Tomorrow weāll have been in the hospital for one week. Itās ok, but kiddo and I are slowly getting fed up.
Also it looks like our roommate - another kid with first-time diabetes - gets to go home this weekend. The two of them got along really well, and kiddo will be more bored thenā¦
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Tomorrow weāll have been in the hospital for one week. Itās ok, but kiddo and I are slowly getting fed up.
Also it looks like our roommate - another kid with first-time diabetes - gets to go home this weekend. The two of them got along really well, and kiddo will be more bored thenā¦
Apparently we arrived as part of an unusual peak in admissions of kids with first-time diabetes.
The doc explained that diabetes type 1 is an autoimmune disease, which often seems to get triggered by viral infections, though the exact mechanism isn't known. So they often get more such patients a while after an infectious wave has peaked.
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Apparently we arrived as part of an unusual peak in admissions of kids with first-time diabetes.
The doc explained that diabetes type 1 is an autoimmune disease, which often seems to get triggered by viral infections, though the exact mechanism isn't known. So they often get more such patients a while after an infectious wave has peaked.
Room change today. A kid we were sharing a room with came down with influenza. Ouch! So that kid + parent get their own room, and we get our own because of course we've been exposed. It's quieter now, and more boring. (Plus I'm super glad I got my influenca shot a few weeks ago.)
The doctors and nurses praise kiddo for learning all the diabetes stuff really quickly. We have actual training sessions, about 2h just today, to prepare us for managing the condition.
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Room change today. A kid we were sharing a room with came down with influenza. Ouch! So that kid + parent get their own room, and we get our own because of course we've been exposed. It's quieter now, and more boring. (Plus I'm super glad I got my influenca shot a few weeks ago.)
The doctors and nurses praise kiddo for learning all the diabetes stuff really quickly. We have actual training sessions, about 2h just today, to prepare us for managing the condition.
Kiddo needs a new phone to replace their hand-me-down Huawei thingy, because the insulin pump's app won't run on it. For various reasons we plumped for a refurbed iPhone 15. Costs more than we meant to spend, but OTOH it's the first actual expense in this whole adventure.
Also, we figure that kiddo deserves to have at least some upside from the whole newly-diagnosed-with-a-lifelong-chronic-condition shitshow.
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Kiddo needs a new phone to replace their hand-me-down Huawei thingy, because the insulin pump's app won't run on it. For various reasons we plumped for a refurbed iPhone 15. Costs more than we meant to spend, but OTOH it's the first actual expense in this whole adventure.
Also, we figure that kiddo deserves to have at least some upside from the whole newly-diagnosed-with-a-lifelong-chronic-condition shitshow.
Because kiddo is such a quick study, a doctor hinted today that we might get to go home already on Wednesday, two days earlier than expected. That would be great!
Provided noone catches influenza, natch.
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Because kiddo is such a quick study, a doctor hinted today that we might get to go home already on Wednesday, two days earlier than expected. That would be great!
Provided noone catches influenza, natch.
Would be nice if the Wednesday release works out.
Iām getting a bit tired of this never-ending pajama party.
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Would be nice if the Wednesday release works out.
Iām getting a bit tired of this never-ending pajama party.
We went on an adventure: cake at the hospital cafe!
Kiddo had a nice chunk of tiramisu. A great opportunity to practice dealing with unknown quantities of carbs, and to get over an initial fear of eating sweets while diabetic. (Also, tiramisu!)
We ended up eyeballing the carbs. Apparently we did ok: Blood sugar values are looking good so far.
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We went on an adventure: cake at the hospital cafe!
Kiddo had a nice chunk of tiramisu. A great opportunity to practice dealing with unknown quantities of carbs, and to get over an initial fear of eating sweets while diabetic. (Also, tiramisu!)
We ended up eyeballing the carbs. Apparently we did ok: Blood sugar values are looking good so far.
With cake training having gone well, kiddo now insists that we should make this a daily practice. For science.
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With cake training having gone well, kiddo now insists that we should make this a daily practice. For science.
To round out Saturday night, we had chips (crisps)!
Kiddo snarfed half my bag. The nurse gave us the side-eye, but didn't intervene.
I wisely decided not to mention the cake thing for the time being.